Thursday, April 7, 2011

A Request from Me

As it says on the right side of the Bit Part Actors Blog, my three year old grandson has Cystic Fibrosis.  This is a short commercial to ask for your help.

This is Cayden -

Cayden's Third Birthday

He is, on the outside, a healthy, fun loving three year old.  He has an older sister, and the best parents in the world.  He also has CF.  It is a disease that somehow he inherited from both his mother's and his father's genes.  Neither side of the family knew they had the gene, so this was a complete surprise to everyone.  Luckily, all young children are tested for CF in their first year, so it was caught early.

Here is the good news.  Our family lives in the Philadelphia area, and we have Children's Hospital of Philadelphia within a short drive.  CHoP is considered the best hospital for children in the USA.  Also, Cayden's mom is a pediatric nurse, and there are a considerable number of nurses in our family to call on.  His grandparents on both sides are also very helpful.

Both of Cayden's parents have great, understanding bosses, so the frequent trips to CHoP have not caused a huge problem.  That doesn't mean they aren't a drain on everyone's stress level.  His daily care at home is also quite a lot of work.  And luckily, his insurance has been pretty good.

Here is my short request.  The Great Strides walk to benefit Cystic Fibrosis is coming up on April 30, 2011.  I am asking you to please take a look at the link below and consider donating to help defeat CF.  The link goes to the page I have set up, and the donations shown there are mine for this year.  I have it set up to automatically charge my card ten bucks a month.

I hope you will click on the "Click to Donate" button at the top of that page.  If you can give five or ten bucks, that would be great.  More would be better, and an automatic charge can be set up any way you can handle.  This money does not go to my family, it goes to fight CF.

Here's the link - Great Strides Walk for CF

If you can't donate this month, maybe you'll keep it in mind for later.  Thanks.


  1. Thanks for the link and count me as a donation to a great cause.
    Your grandson is absolutely adorable! Wishing Cayden and your family health and happiness with great strides for a cure of CF.

  2. Thank you, Page. It means a lot.

    It is fascinating to watch Cayden enjoying his life, while putting up with the daily medical routine and the trips to the hospital when things flare up. He really doesn't know anything else, so he appears normal if you were to see him.

    We also have to be very careful about introducing any new germs in his home. I admire how much his parents do while keeping a good attitude in the home.

  3. What a sweetheart! Count me in, too, Allen. I'm going to tweet this post and see if a few more donations might come in that way. All the best to you and your family and here's hoping a cure for CF is on the way.

  4. Thank you so much, Eve. I know this effort will make a difference. And thanks for passing it on.


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